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EDSers United

Plainsboro, New Jersey, United States

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General Info:

AT EDSERS united. OUR mission is to generate international awareness. Education. And support for EHLERS DANLOS syndrome by providing resources. Databases of information. Inspiration. And counseling. In addition. We promote local community networks that encourage awareness. Support. Sharing of information. And SELF-PRESERVATION globally. We represent and advocate on behalf of individuals afflicted with EHLERS-DANLOS syndrome (EDS). And other related connective tissue disorders world wide working to establish a future where a cure for EDS exists. By joining OUR voices. We create a powerful force for recognition. Encouraging awareness. We strive to educate the world about EHLERS-DANLOS syndrome patient's need for treatment options and an eventual cure. To fulfill OUR mission and OUR vision for the future. EDSERS united depends upon the generosity of OUR members. Donors. Sponsors. And others to help US build OUR growing community. Donations. Contributions. And sponsorship are vital components to building and maintaining the EDSERS united network.

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